Narrative Analysis of Mothers' Experiences of Grief for Children with Cancer

Document Type : Original Article

Authors

Faculty of Literature and Humanities, University of Isfahan, Isfahan, Iran

Abstract

This research aims to analyze the narrative of grief experiences among mothers who have lost their children due to cancer. Method: The study employs narrative analysis with a sample of 14 mothers who have lost their children to cancer within the past three years, conducted in 2023 in Khomeini-Shahr, Isfahan.Findings: Using the narrative analysis method with seven categories and three main themes, including emotions directed towards the child, emotions towards others, and conflicting perceptions of spirituality, the study reveals that mothers, from the onset of the illness until after the child's passing, experience escalating feelings of sorrow, despair, and sometimes fear and anger. Good support and empathy from spouses, extended family, the hope instilled by physicians, maintaining connections, practicing religious rituals, and financial contributions to healthcare institutions (Mahak and Cancer Hospital) contribute to alleviating unpleasant grief emotions. Analysis of research codes indicates that nurses' impatience and the lengthy and painful process of chemotherapy intensify the grief and sorrow experienced by mothers. During this challenging period, a sense of spirituality is perceived as conflicting emotions of anger and satisfaction. Understanding and empathy with the experiences of grieving mothers can enhance their resilience in enduring the grief and suffering.

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فهرست منابع
اصغری نکاح، سید محسن، جانسوز، فاطمه، کمالی، فریبا ، و طاهری نیا، سمانه .(1394). وضعیت تاب آوری و آسیب های هیجانی در مادران دارای کودک مبتلا به سرطان. روانشناسی بالینی، 1 (25)،26-15. 10.22075/jcp.2017.2187
اصلاح کار، سعیده، فتاحی اردبیلئ ،اعظم، و معصومی، رویا. (2018). مطالعه طولی کنارآیی مادران کودکان مبتلا به سرطان در پدیده‌سوگ. اندیشه و رفتار در روان شناسی بالینی, 13(50)، 27-36. https://sid.ir/paper/172052/fa
اصلاح کار، سعیده، وزیری، شهرام، و لطفی کاشانی، فرح. (2022). تعیین سهم عوامل روانشناختی در فرایند تسهیل سوگ والدین دارای کودک مبتلا به سرطان: پژوهش آمیخته،. مجله دانشگاه علوم پزشکی سبزوار، 28(6)، 826-837.
خلیلی، فریبا، و آقاجری، پروانه .(1397).، بررسی سوگ مزمن در والدین کودکان مبتلا به سرطان در مرکز آموزشی درمانی کودکان تبریز 1397، هفدهمین کنگره سراسری انجمن مدیکال انکولوژی و هماتولوژی ایران، اصفهان، https://civilica.com/doc/838755
ربانی خوراسگانی، علی, و کیانپور، مسعود. (2009). جامعه شناسی احساسات. جامعه شناسی کاربردی، 20(2): 35-64. 20.1001.1.20085745.1388.20.2.2.6
سیاه پوش کلیایی، سهیلا ، و رضاخان‌، سیمین دخت (1398). افزایش  افزایش امیدواری و مدیریت خشم مادران دارای کودکان مبتلا به سرطان از خلال آموزش مهارت‌های زندگی. دو فصلنامه روانشناسی معاصر، (2) 14، 90-83. 10.29252/bjcp.14.2.83
غیاثوند، احمد،  و اسدی، سیده سارا. (2019).، روایت زنان متأهل شهر کرمانشاه از تداوم زندگی زناشویی. زن در توسعه و سیاست، 17(2)، 193-221.https://doi.org/10.22059/jwdp.2019.274140.1007574
قدس، علی اصغر، محمدی، عیسی، ونکی، زهره، و کاظم نژاد، انوشیروان. (1389). معنای رضایت بیماران از پرستاران: یک تحقیق کیفی. مجله ایرانی اخلاق و تاریخ پزشکی، 4(1)، 47-61.
هاشمی، فاطمه السادات‌، سپهوند‌، سارا، حبیبی عسگرآباد‌، مجتبی‌،گنجوی، مرضیه‌، و میرزایی، مهتاب. (1396). مقایسه استرس فرزند پروری در مادران کودکان مبتلا به سرطان مهتاب. سلامت اجتماعی‌، (4)4، 321-331. DOI: http://dx.doi.org/10.22037/ch.v4i4.11502.
References
 
Abbott, H. P. (2002). The Cambridge Introduction to Narrative, Cambridge, UK u. New York, NY USA. https://doi.org/10.1017/CBO9780511816932
Abdollahzadeh, F., Aghahossini, S. S., Rahmani, A., & Kermani, I. A. (2012). Quality of life in cancer patients and its related factors. Journal of caring sciences, 1(2), 109. 10.5681/jcs.2012.016. eCollection 2012 Jun.
Alam, R., Barrera, M., D'Agostino, N., Nicholas, D. B., & Schneiderman, G. (2012). Bereavement experiences of mothers and fathers over time after the death of a child due to cancer. Death studies, 36(1), 1-22. 10.1080/07481187.2011.553312
Behzadi, H., Borimnejad, L., Mardani Hamoleh, M., & Haghani, S. (2022). Effect of an Online Educational Intervention on Resilience and Care Burden of the Parents of Children With Cancer. Iran Journal of Nursing, 35(136), 118-133. 10.32598/ijn.35.2.247.4
Davies B, Worden JW, Orloff SF, Gudmundsdottir M, Toce S, Sumner L.(2004). Bereavement. In: Carter BS, Levetown M, editors. Palliative care for infants, children, and adolescents: A practical handbook. Johns Hopkins University Press.
De Caroli, M. E., & Sagone, E. (2014). Stress and support in relation to parental self: A comparison between mothers of children in cancer treatment and mothers of healthy children. Procedia-Social and Behavioral Sciences, 114, 211-215. 10.1016/j.sbspro.2013.12.687
Foster, T. L., Gilmer, M. J., Davies, B., Dietrich, M. S., Barrera, M., Fairclough, D. L., ... & Gerhardt, C. A. (2011). Comparison of continuing bonds reported by parents and siblings after a child's death from cancer. Death studies, 35(5), 420-440. https://doi.org/10.1080/07481187.2011.553308
Koohkan Aliabadi E, Rajabi G, Yousofian S, Zare- FarashbandiF. (2019). Factors related to health information needs of families who had children with cancer . Payesh. 18(2),161-71. 20.1001.1.16807626.1398.18.2.1.4
Kreicbergs, U. C., Lannen, P., Onelov, E., & Wolfe, J. (2007). Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes. Journal of clinical oncology, 25(22), 3307-3312. 10.1200/JCO.2006.10.0743
Law, K., & Kirk, S. (2022). Examining the experiences and support needs of bereaved parents after the death of a child during early adulthood from cancer. Cancer Nursing, 45(4), 719-727. 10.1097/NCC.0000000000000998.
Lincoln, YS. & Guba, EG. (1985). Naturalistic Inquiry. Newbury Park, CA: Sage Publications.
McNeil, M. J., Kiefer, A., Woods, C., Barnett, B., Berry‐Carter, K., Clark, L., ... & Baker, J. N. (2022). “You are not alone”: Connecting through a bereaved parent mentor program for parents whose child died of cancer. Cancer medicine, 11(17), 3332-3341. 10.1002/cam4.4696
Rebecca L. Kimberly D. Miller Nikita Sandeep W., (2023 )Cancer statistics ,CA :A Cancer Journal for clinicians, Volume73, Issue1,48-17. 10.3322/caac.21763
Middleton, W., Raphael, B., Burnett, P., & Martinek, N. (1998). A longitudinal study comparing bereavement phenomena in recently bereaved spouses, adult children and parents. Australian and New Zealand ,Journal of Psychiatry, 32(2), 235-241. 10.3109/00048679809062734
Pohlkamp, L., Sveen, J., Kreicbergs, U., & Lövgren, M. (2021). Parents’ views on what facilitated or complicated their grief after losing a child to cancer. Palliative & supportive care, 19(5), 524-529. 10.1017/S1478951520001212
Snaman, J. M., Kaye, E. C., Torres, C., Gibson, D. V., & Baker, J. N. (2016). Helping parents live with the hole in their heart: the role of health care providers and institutions in the bereaved parents' grief journeys. Cancer, 122(17), 2757-2765. 10.1002/cncr.30087
Snaman, J. M., Mazzola, E., Helton, G., Feifer, D., Morris, S. E., Clark, L., ... & Wolfe, J. (2023). Early Bereavement Psychosocial Outcomes in Parents of Children Who Died of Cancer With a Focus on Social Functioning. JCO Oncology Practice, 19(4), e527-e541. 10.1200/OP.22.00538
Spannagel, C., Gläser-Zikuda, M., & Schroeder, U. (2005, May). Application of qualitative content analysis in user-program interaction research. In Forum Qualitative Sozialforschung/forum: qualitative social research. https://doi.org/10.17169/fqs-6.2.469